I don't know how other people use their Blog but I use mine to get my feelings out that I can't talk to about with other people, even some of my friends that we may share the same things such as an illness or two and I don't want to be judged by them.
These illness' really mess with you, or they mess with me. I am more emotional than I have ever been before in my life. I always thought that people that are sick were compassionate towards others that were ill, but boy was I wrong. It's almost like a contest if you aren't as sick as them then they think you aren't sick and need to buck up and move on, which is NOT the way I think. Each disease is different and we are ALL different and how our bodies handle these diseases', meds, (pain, etc) and usually we have multiple ones (fibro, lupus, RA, etc). I would never compare my Lupus to someone else or think I was sicker because it effects my brain, GI tract, etc. I also have joint and muscle pain and if someone only has that and it's bad I feel for them because it's painful and can be very debilitating, especially if you are not on the right combo of medications.
So I guess the moral to my story is don't try to compare "your" illness' to others and don't ever let anyone make you feel like you are not sick, especially a "so called friend", you know how you feel and don't waste your energy on them. Everyone is different and so is their disease. Some diseases' are mild and some are severe when you have organ involvement but don't ever belittle someone and their symptoms, we all hurt the same, emotionally, physically, etc. and we are all in this together. This year has been especially bad for me, started off bad but I still love to help others that are having a hard time and need support too which helps me, it always has. If I can help someone get a diagnosis sooner or a better doctor, etc and hopefully they will get help sooner rather than later, it takes some patients years to get a diagnosis and treatment plan, if I can speed up that process, I have helped someone and possibly saved their life or at least given them "some" of their life back and that's what it's all about, helping one another. It only took me one year to get diagnosed but for others it can take up to 10 years. Those are the people that need help and support.
Thank you for listening and if you know anyone with lupus, tell them about my Blog and they can contact me.
