My name is Stacie

My name is Stacie, I am a married mom of 2 great kids. I was diagnosed with Lupus in May 2005, it has remained very active despite taking an arsenal of powerful medications each day. It affects my joints, digestive tract, heart, lungs, brain & sun sensitivity. I also have Celiac disease, Hashimoto's, Fibromyalgia, Sjogren's, GERD and Raynaud's.

I think everything happens for a reason and I can only hope that through my own experiences I can help others cope with this dreaded disease.

Thursday, June 14, 2012

Dealing with people......

Do you ever get tired of dealing with people? You either have people ignoring you and your illness or you have people that are oblivious and say stupid things like, "well you look good", I just want to kick them in the teeth. Really what do you say to something like that? I am from the South, so in my sweet southern voice I usually say something like "well I may look ok on the outside (which I probably don't because I don't have any make up on and my hair is not fixed), if only you could feel what I feel like on the inside, I'm in a lot of pain most of the time. If only they would walk a day in our shoes, how that would change things. Wow, I can think of many people I would choose to walk in my shoes, that really is something that makes you say hmmmmmmmmmm.......... People are ignorant, some people really don't realize what they are saying but there are those that do and it's those people that infuriate me to no end! Compassion, tenderness and kindness towards sick people, these are things some people do not have. People go on with their lives and they forget about the friend that used to be on the church pew, used to go shopping with them, used to go out to eat with them... they forget and when you do see them they say they have been thinking about you and I am sure they have but is that enough? Do we need more? YES!! We need friends that will come drag our butts out of the house for lunch or shopping or a cup of coffee. We need to be pushed, nudged, shoved, etc. because sometimes its all we can do to get up and take a shower. We need our friends as much as we need a good doctor. Just because we can't keep up like we use to doesn't mean write us off completely, we're just at a slower pace now ;) We could also use your help around our house, most of us can't keep house like we once could and it's very frustrating for us, so any help is appreciated! I guess what it really boils down to is this, we as the patient need to be honest about our health condition and ask for help! If we don't talk about it or ask for help then people won't know and won't know how to help.

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